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In the summer of 2019, Ginny noticed a small lump on her hip that overtime started to grow and cause pain. After an MRI it was determined that Ginny had a soft tissue mass on her left thigh. A biopsy was done declaring the mass a benign hematoma. It was removed in early October. A few days after surgery Ginny went to the ER after coughing up blood. A CT of the chest revealed innumerous nodules all over her lungs. After 9 days in the hospital and 74 tests, Ginny was diagnosed with stage IV CIC-DUX4 round cell sarcoma on October 21st, 2019. The primary tumor was what they thought was the hematoma and it had already spread to the lungs, making it stage IV at diagnosis with a very poor prognosis for long term survival. Starting in November 2019 Ginny was on multiple chemo treatments, had whole brain radiation, radiation to her left thigh and continued to fight everyday.

Ginny along with her family and friends were determined since the day of her diagnosis to work to find a cure. Thus, Spin4Gin was created by Ginny's childhood best friends. The clever name was created as they planned the very first fundraising event - a spin class followed by a fundraising dinner was planned in March of 2020. Due to the covid-19 pandemic, this event unfortunately did not happen, but the creativity of Ginny and her friends carried on. In July of 2021, the very first Spin4Gin Drive Out Sarcoma Golf Tournament was held, raising over $35,000 to be donated to the Cleveland Clinic in support of Sarcoma Cancer research. 

On August 15, 2021 Ginny passed away peacefully at home following her courageous battle. Whenever you see a cardinal, rainbow or sunflower, please think of Ginny and the legacy she left behind.

In August of 2022, Spin4Gin officially became a 501c3 non-profit organization. The mission of Spin4Gin is to honor Ginny's legacy by continuing her fight to raise awareness of Sarcoma while supporting innovative research and treatment options. 

 

The family and friends Ginny left behind will continue to fight this horrible disease in her honor.  We invite you to join us on our fight, and donate to Spin4Gin. 

GINNY'S STORY
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